Blogs

The Extraordinary Extra Ordinary

The Extraordinary Extra Ordinary

We often hear, “Y’all are extraordinary parents,” and we very much appreciate the compliment.        With that said, the word “extraordinary” is interesting to me. Mainly because whoever penned this word got lazy and just smashed two words together and called it a...

Waffle Sauce

Waffle Sauce

Waffle Sauce Is it bad that I think it is awesome that Drew calls syrup “waffle sauce”? In my opinion, waffle sauce is right up there with the guy who asked the question “why are jet skis not called boater cycles”. I mean, technically the kid is not wrong. Log cabin...

Attempting Brave

Attempting Brave

Attempting Brave ​​To all those who read “A Picture to Precious” this blog was written a month before, I managed to misplace it on my hard drive. For all you movie buffs, let’s call it a prequel. It is 11 am, we are at Children’s Hospital in Atlanta with Drew, for the...

The Journey to Finding Purpose

The Journey to Finding Purpose

The Journey to Finding Purpose I have searched for many things in life over the past 11 years with my son Drew. That list would include everything from a rare disease diagnosis to a toy ice cream truck that drew played with one time four years ago. Some of what I was...

A Moment Too Precious for a Picture

A Moment Too Precious for a Picture

A Moment Too Precious for a Picture I love going to a child’s first birthday party, and not for the reason you’re thinking. Sure, I care about the little ankle-biter but the entertainment for the day is mom and dad.  It’s like watching a SWAT team clear a house during...

The Pilot Jumped

The Pilot Jumped

The Pilot JumpedSeveral years ago, while visiting our team of doctors at Children’s Hospital of Philadelphia (a.k.a. CHOP), Christy and I were asked to be part of a commercial. The video featured parents being interviewed about the excellent level of care we had...

Welcome to Holland

Welcome to Holland

Welcome to HollandTruth be told, I have never been asked what it is like to be a special needs parent.  Probably because that would be a terrible question to ask someone. Having said that, I do think some perspective into our world would be helpful.The poem below...

Fighting Gravity

Fighting Gravity

Fighting GravityIts 8:40 am. I sit in my usual spot for that time of day at Athens Regional Pediatric outpatient clinic. My five-year-old son, Drew, is in his physical therapy session. Drew is a regular, which makes me a regular as well. How regular, you ask? Four...

Waiting Room Friends

Waiting Room Friends

Waiting Room FriendsIn my last blog post, I mentioned spending a lot of time in waiting rooms. If you’re a fan of the show The Office, you will appreciate my ability to channel my inner Dwight Shrute with my version of “Mega Desk”, using multiple waiting room chairs...